2017 Highlights

Largest Gathering of the PI Community in the World

The IDF 2017 National Conference, held in Anaheim, CA, June 15-17, brought together nearly 1,276 attendees from 43 states, Washington D.C., and Guam as well as Canada, China, Germany, India, Israel, Italy, the United Kingdom and South Korea. This was the first IDF National Conference for 59% of attendees and the first IDF event for 46% of attendees.

More than 60 educational sessions filled each day featuring 66 medical and life management experts who volunteer their time to help the primary immunodeficiency (PI) community.

From toddlers to teens, more than 150 children took part in the IDF Youth Program, taking part in fun, educational activities throughout the conference. An interactive exhibit hall allowed participants to learn about the latest about products, services and resources for the PI community.

Exceptional members of the medical community were honored. The IDF Art of Nursing Award, which pays tribute to a member of the nursing community who has extensively contributed toward improving the diagnosis and care of patients with PI, was presented to M. Elizabeth M. Younger, CRNP, PhD of Johns Hopkins University School of Medicine and member of the IDF Nurse Advisory Committee. The Boyle Achievement Award pays tribute to a member of the medical or scientific community who has extensively contributed toward improving the diagnosis and care of people with PI. This year, it was a tie between two very deserving physicians who both serve on the IDF Medical Advisory Committee: Jennifer Puck, MD of University of California, San Francisco and Kathleen Sullivan, MD, PhD of the Children’s Hospital of Philadelphia.

Perhaps the most life changing moments of the conference occurred between patients and caregivers who were able to meet others going through similar experiences during networking sessions, social events or even the conversations in the hallways between sessions. Although PI is rare, those affected by these rare chronic diseases need to know that they are not alone, and the IDF National Conference helps bring the community together.

Historic Moments

Farewell to Marcia Boyle

This year’s conference served as a farewell celebration for IDF President & Founder, Marcia Boyle. Following more than 37 years of skilled and passionate leadership, Marcia announced her plans to retire earlier this year.

“Most of my professional life has been dedicated to IDF, thus my decision to retire was not an easy one,” said Marcia. “But I feel the time is right for me and my family. As for IDF, I am confident the organization is in a strong position for continued growth while expertly meeting the needs of the PI community. We have an outstanding team of professionals and volunteers who are poised for continued success.”

What started as an organization on a shoe-string budget, being run by a young mother from her kitchen table, has now evolved into an internationally-recognized patient organization dedicated to improving the diagnosis, treatment and quality of life of people with PI through advocacy, education and research.

Click here to read more about Marcia’s retirement. Click here to view Marcia’s farewell video.

Announcement of John G. Boyle as new President & Chief Executive Officer

At the IDF 2017 National Conference, the IDF Board of Trustees announced that John G. Boyle will serve as the organization’s new President & Chief Executive Officer. John brings a wide base of non-profit management experience to his new role with IDF. He has held a number of executive positions with leading national non-profit organizations throughout his career and currently serves as Vice President of External Relations at IDF. John was instrumental in developing a number of new initiatives for the Foundation, including the IDF Walk for Primary Immunodeficiency that launched in 2013, has now grown to 12 cities across the U.S., and raised in excess of $3 million to support vital IDF programs and resources, including funding a new IDF research grant.

Click here to read more about John’s announcement.

Thank You for 2017 and See You in 2019!

Thank you to the attendees, volunteers, presenters, sponsors, exhibitors and all who helped make the IDF 2017 National Conference a success!

The IDF 2019 National Conference will be held June 20-23, 2019 in National Harbor, MD at the Gaylord Palms Resort outside of Washington, D.C.


IDF 2017 National Conference Sponsors

Legacy Sponsors
CSL Behring

Silver Sponsors
AmerisourceBergen Corporation
Horizon Pharma
Leadiant Biosciences