SCID & SCID Variant Symposium

IDF 2017 National Conference
Special SCID and SCID Variant Symposium

June 15-16, 2017

This year, IDF will offer a special symposium for individuals and families living with Severe Combined Immune Deficiency (SCID) and variants of SCID. This will include presentations from experts in the field regarding SCID and during special sessions available Thursday and Friday. Participants can attend general sessions Friday after the SCID  sessions and all day on Saturday. 

Scholarships & Childcare
There are scholarship opportunities for the special symposia for  hotel accommodations, and limited travel available for individuals and families. For more information on Scholarships, click the button below. When registering for the conference, be sure to include that you want to attend the Special SCID & SCID Variant Symposium and the name of the family member with SCID. Please note if you are a family with ADA SCID.

Childcare is available for attendees of this symposium during the symposium hours on Thursday. On Friday and Saturday, children can participate in the IDF Youth Program.

Agenda
Below is a preliminary agenda. Topics and presenters are still being finalized.

Topics
Getting to Know You: Networking
SCID National Update and Advocacy
Where We’ve Come from, Where We’re Going: SCID in the Era of Newborn Screening
What is the PIDTC, USIDNET and PI CONNECT?
Next Generation & Quality of Life
SCID Family Journey: Discussion Panel
Current Known Genetic Forms of SCID
Stem Cell Transplantation for SCID
X-linked Gene Therapy and the Future of Gene Therapy for SCID
ADA SCID
Managing Autoimmune Issues

Presenters
Barbara Ballard
IDF Board of Trustees

Jack Bleesing, MD
Cincinnati Children’s Hospital

Rebecca Buckley, MD
Duke University School of Medicine

Mort Cowan, MD
University of California – San Francisco

Don Kohn, MD
University of California – Los Angeles

Harry Malech, MD
National Institute of Allergy and Infectious Disease – NIH

Ewelina Mamcarz, MD
St. Jude Children’s Research Hospital

Megan Murnane
University of California – San Francisco

Sung-Yun Pai, MD
Dana-Farber Boston Children’s Cancer and Blood Disorders Center

Jennifer Puck, MD
University of California – San Francisco

Heather Smith
SCID, Angels for Life – Founder

Brian Sorrentino, MD
St. Jude Children’s Research Hospital

Kathleen Sullivan, MD, PhD
The Children’s Hospital of Philadelphia

Amy Walsh
IDF Board of Trustees

Kenneth Weinberg, MD
Stanford Medicine

The Special SCID& SCID Variant Symposium is sponsored in part by the IDF SCID Initiative and Leadiant Biosciences.

CLICK HERE for more information about how to apply for a SCID/CID Conference Scholarship