New Sessions in 2017

At each IDF National Conference, there is new and up-to-date information being presented to the IDF and PI community by world-renowned immunologists and healthcare professionals about the various primary immunodeficiency diseases. The 2017 IDF National Conference is no different. This year, there will be new and special sessions throughout the duration of the conference. These sessions include:

Caring for the Caregiver
Being a caregiver is a rewarding experience. However, it can also bring challenges when caregivers forget to care for themselves. This session will provide tips for caregivers to help them find balance and support as they care for a loved one.
Christina Mangurian, MD
University of California – San Francisco

Clinical Trials: What to Consider
Learn about clinical trials for individuals with PI and questions to ask if you are thinking about participating.
Colleen Danseareau, MSN, RN, CPN, CPHON
Dana-Farber Boston Children’s Cancer and Blood Disorder Center

Elizabeth Garabedian, RN, MSLS
National Human Genome Research Institute – NIH

For Parents: Parenting a Teen or Young Adult Diagnosed with PI
This session will focus on helping your teen or young adult understand PI, normalizing their life and empowering them to care for themselves and  transition into adulthood.
William Blouin, MSN, ARNP, CPNP
Nicklaus Children’s Hospital

Alexandra Matthews, PhD
Private Practice

NK Cell Deficiency
Find out more about Natural Killer (NK) Cell Deficiency. Natural killer (NK) cells are innate immune cells important in the killing of viral-infected or malignant cells.
Jordan Orange, MD, PhD
Texas Children’s Hospital

Unspecified Combined Immunodeficiencies with Autoimmunity & Infection
Individuals with these types of diseases often have clinical symptoms that overlap with other immunodeficiencies, such as Common Variable Immune Deficiency (CVID) or Agammaglobulinemia, but they don’t fit neatly within those diagnoses. Examples of such disorders include CTLA-4 haploinsufficiency, STAT1 gain-of-function, IPEX, complement deficiencies and others.
Troy Torgerson, MD, PhD
Seattle Children’s Hospital