CGD Symposium

The Chronic Granulomatous Disease (CGD) community will gather at the Immune Deficiency Foundation 2017 National Conference in Anaheim, CA for a Special CGD Reception and Special CGD Symposium.

Experts in the field of CGD will give educational presentations and answer questions from the community. Attendees will have the chance to network and meet others going through similar experiences.

The reception and symposium are detailed below and will be held Thursday, June 15 and Friday, June 16. Participants can attend general conference sessions Thursday, Friday and Saturday.

Share Your Story

While at the conference, the CGD community will be able to tell their story if they choose to do so, including the option to participate in IDF Reel Stories and share their story with Horizon Pharma, sponsor of the Special CGD Reception and Special CGD Symposium. Sign-up sheets for IDF Reel Stories will be available at the Registration Desk. Representatives from Horizon Pharma will be conducting interviews throughout the conference.

When using social media to post about your conference experience, be sure to use hashtags: #IDF2017NC and #livingwithCGD. Follow IDF on Facebook, Twitter and Instagram.

Questions about sharing your story? Click here to e-mail IDF.

Agenda

Thursday, June 15, 2017

10:30 AM-12:00 PM
Special CGD Reception – Platinum Patio
Sponsored by Horizon Pharma

Lunch will be available from 10:30 AM-12:00 PM during the Special CGD Reception on the Platinum Patio outside of Platinum 9.

Special CGD Symposium – Platinum 9
Sponsored by Horizon Pharma

12:00 PM

Welcome

  • Kara Moran, IDF Senior Director of Communications
  • Rob Metz, Senior Vice President, Business Operations, Advocacy & Government Affairs, Horizon Pharma

Remembering Mary Hurley

  • Marcia Boyle, IDF President & Founder
  • Barbara Meade, Member of the CGD Community
  • Harry Malech, MD, National Institute of Allergy and Infectious Disease – NIH

12:15 PM
Introduction
Harry Malech, MD
Jennifer Leiding, MD, Pediatric Allergy/Immunology – University of South Florida

12:20 PM
Understanding CGD

  • Definition, Diagnosis including Genetics, General Care including General Measures for Preventing Infection
    Jennifer Leiding, MD
  • Psychosocial Impact and Effect on Quality of Life
    Jennifer Leiding, MD

1:00 PM
Diagnosis and Management of Inflammatory Bowel Disease in CGD
Christa Zerbe, MD, National Institute of Allergy and Infectious Disease – NIH

1:30 PM
Female Carriers of X-linked CGD – Problems and Treatments
Christa Zerbe, MD

1:45 PM
Break

 2:00 PM

Understanding Use of Antibiotics and Interferon Gamma for CGD

  • Understanding Use of Antibiotics in CGD
    Jennifer Leiding, MD
  • Understanding Use of Interferon Gamma in CGD
    Jennifer Leiding, MD

Treatment Options for CGD

  • Bone Marrow Transplantation
    Suhag Parikh, MD, Pediatric Blood and Marrow Transplant Program, Duke University
  • Gene Therapy and the Future for CGD
    Harry Malech, MD

3:45 PM
Break

4:00 PM
Ask the Medical Experts: Q & A Session

Panel Members:

  • Jennifer Leiding, MD
  • Harry Malech, MD
  • Suhag Parikh, MD
  • Christa Zerbe, MD

Friday, June 16, 2017

10:30 AM – 2:30 PM

10:30 AM
Brief Welcome
Jennifer Leiding, MD

10:35 AM
Review of USIDNET Survey
Morna Dorsey, MD, Pediatric Immunology and Allergy, UCSF

10:50 AM
Q & A Panel
Members of the CGD Community

12:00 PM
Break & Lunch*

1:00 PM
Networking Sessions for Individuals with CGD and Caregivers

*On Friday, children of parents attending the CGD Symposium have the option of remaining in the IDF Youth Program and receiving lunch there.

For a complete conference schedule, go to: www.idfnationalconference.org/schedule.

Questions about the IDF 2017 National Conference? Click here to contact IDF.